What Is Sotos Syndrome?
8. Standard Treatment
Treatment of Sotos syndrome is supportive and usually requires a multidisciplinary team consisting of surgeons, neurologists, geneticists, speech pathologists, pediatric endocrinologists, pediatricians, orthopedists, ophthalmologists, and physical therapists.
Once diagnosed with Sotos syndrome, an examination of the heart and kidneys should be performed to identify if there are any anomalies. Those with anomalies should be referred to an appropriate specialist. A thorough examination of their back for scoliosis, blood pressure, eye exam, and speech evaluation should also be performed yearly. Evaluation of development is also important to ensure appropriate steps are taken to help them reach their highest potential. Special services such as special education and speech therapy may be required. Genetic counseling is recommended for families.
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