What Is Marfan Syndrome?
9. Coping and Support
In the past, there was little reliable information available about Marfan syndrome. Thanks to more research into the condition, doctors have more information about MFS that they can pass along to patients and family members. Many communities offer support groups where people with Marfan syndrome can come together and share their experiences.
MFS symptoms may first emerge during childhood or adolescence. This can be difficult to cope with on top of the self-consciousness that many young people already go through. Parents may be able to make symptoms less noticeable by buying clothes more flattering to the child’s body shape or replacing glasses with contacts.
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