What Is Ehlers Danlos Syndrome?
8. Coping and Support
There may be in-person support groups in your community for people with Ehlers-Danlos syndrome. If not, you may be able to find one online. These groups offer the opportunity to talk over your experiences with EDS and get help and advice from people going through the same thing. You may also benefit from counseling.
Your managing of your condition will be better the more you know about it. Ask your family doctor for a referral to an experienced specialist and ask about trustworthy sources of information with which to do research. You should be open about your condition with friends, family, and employers so they can make appropriate accommodations for you.
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