What Is Ehlers Danlos Syndrome?
4. Prevalence
Though some subtypes are more common than others, Ehlers-Danlos syndrome on the whole is relatively rare. EDS affects people of all races and ethnicities. Both men and women can experience EDS. The estimated incidence rate is approximately one in 2,500 to one in 5,000.
However, the Ehlers-Danlos Society believes that some cases of EDS go undiagnosed and the actual incidence rate may be higher. Research into EDS is ongoing. The 13 categories are a recent development as of 2017. Originally, EDS was divided into 11 categories, which were later simplified into six, then expanded again as research revealed more criteria.
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