10 Uncombable Hair Syndrome FAQs
- 1. ’Uncombable hair syndrome.’ MedlinePlus. https://medlineplus.gov/genetics/condition/uncombable-hair-syndrome
- 2. Uncombable hair syndrome.’ National Institutes of Health. https://rarediseases.info.nih.gov/diseases/5404/uncombable-hair-syndrome
- 3. ’Bork Stender Schmidt syndrome.’ National Institutes of Health. https://rarediseases.info.nih.gov/diseases/938/bork-stender-schmidt-syndrome
- 4. Hicks J; Metry DW; Barrish J; Levy M. ‘Uncombable hair (Cheveux incoiffables, pili trianguli et canaliculi) syndrome: brief review and role of scanning electron microscopy in diagnosis.’ Ultrastructural Pathology 2001 https://pubmed.ncbi.nlm.nih.gov/11407534
Are There Resources Available To Help Understand and Manage Uncombable Hair Syndrome?
The National Organization of Rare Disorders provides updated information on rare genetic diseases, along with support, advocacy and funding sources. Uncombable hair syndrome and its related conditions are included in the organization's catalog.
Other associations that can offer information and other resources helpful in understanding and managing uncombable hair syndrome include the American Academy of Dermatology and the American College of Genetics. Both of these organizations provide support and education about UHS to families of affected children and physicians.
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