What Is Usher Syndrome?
10. Managing Usher Syndrome
As there is no cure for Usher syndrome, the next best option is to manage the symptoms. Hearing is often the first challenge to be addressed. Where it is detected early, testing will help determine if hearing aids or cochlear implants are the better options. Depending on the type of Usher disorder and severity of hearing loss, a child can start with hearing aids and later switch to cochlear implants.
Learning sign language and braille can also be beneficial. Mobility training and orientation can assist with imbalance concerns. Research has also shown that consuming high levels of vitamin A palmitate may slow down vision problems associated with RP. This therapy should only however be undertaken under the supervision of an ophthalmologist.
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