Myotonic Dystrophy Definition, Causes and More
- 1. NHS Choices, NHS, www.nhs.uk/conditions/muscular-dystrophy/
- 2. 'Myotonic Dystrophy.' Genetic and Rare Diseases Information Center, U.S. Department of Health and Human Services, rarediseases.info.nih.gov/diseases/10419/myotonic-dystrophy.
- 3. 'The Myotonic Dystrophies.' Muscular Dystrophy UK, www.musculardystrophyuk.org/about-muscle-wasting-conditions/myotonic-dystrophy/myotonic-dystrophy-factsheet/.
8. What To Tell Your Doctor
Because myotonic dystrophy is a rare disorder that can present with mild symptoms, a doctor may not necessarily be aware a person has it until they're told.
If a person with myotonic dystrophy needs surgery, it's especially important that the anesthesiologist and surgeon know. General anesthesia can be extremely dangerous for people with even mild myotonic dystrophy. A person with myotonic dystrophy should carry an alert card so doctors know to provide appropriate emergency care. Issues usually only occur when the doctor is unaware.3‘The Myotonic Dystrophies.’ Muscular Dystrophy UK, www.musculardystrophyuk.org/about-muscle-wasting-conditions/myotonic-dystrophy/myotonic-dystrophy-factsheet/.
Advertisement