Myotonic Dystrophy Definition, Causes and More
Article Sources
- 1. NHS Choices, NHS, www.nhs.uk/conditions/muscular-dystrophy/
- 2. 'Myotonic Dystrophy.' Genetic and Rare Diseases Information Center, U.S. Department of Health and Human Services, rarediseases.info.nih.gov/diseases/10419/myotonic-dystrophy.
- 3. 'The Myotonic Dystrophies.' Muscular Dystrophy UK, www.musculardystrophyuk.org/about-muscle-wasting-conditions/myotonic-dystrophy/myotonic-dystrophy-factsheet/.
10. Resources for Myotonic Dystrophy
Living with myotonic dystrophy may be isolating and frightening at times. Many people with muscular dystrophy live a full and happy life, but support can be helpful as well.
Myotonic dystrophy associations and support groups exist in the United States and United Kingdom as well as a global Facebook group where those who have myotonic dystrophy can share stories and support. An online myotonic dystrophy support organization may help those with the condition find support and in advocating for themselves.2‘Myotonic Dystrophy.’ Genetic and Rare Diseases Information Center, U.S. Department of Health and Human Services, rarediseases.info.nih.gov/diseases/10419/myotonic-dystrophy.
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